How has caregiving changed your routines and social life? And advice?

It’s a roller coaster, so we just go day by day. As a caregiver, you have to put aside your needs. It’s not all about me. There were things we tried to do — we went to a wedding a couple of years ago and he got really sick, so we didn’t get to dance even though we had practiced. Those things are hard.

So now, we make plans for the day depending on how he feels. Some days are bad and he has no energy to do anything. Some days are better and we can go for a walk. There are good days and bad days — we just take it day by day.