“Prevention is the key. Every time I have conversations with people, everybody thinks that asbestos is actually banned in the United States, and they're shocked to hear that it's not. …A lot of times people don't get involved unless it actually affects themselves or somebody they know or somebody they love. …You may think that this is not going to affect you, but the truth is it is affecting all of us.”

Missy Miller

Missy Miller, director of Medical Outreach, The Mesothelioma Center

“Participants felt angry regarding their exposure to asbestos and having been diagnosed with mesothelioma and some channelled this anger into campaigning for the removal of asbestos or compensation from those who had exposed them. The ability to release and validate their anger and frustration provided therapeutic value. …Participants expressed the importance to them of a public recognition of the injustice of being exposed to asbestos and that they were a part of a larger social justice movement.”

Dr. Stephanie Ejegi-Memeh, Dr. Catriona Mayland et al., European Journal of Oncology Nursing, 2024

“Collaboration is the future, especially in raising awareness about mesothelioma and the dangers of asbestos exposure. I’ve teamed up with health care advocates as well as reputable organizations such as The Mesothelioma Center and the American Cancer Society on prevention and early detection campaigns. I’m not in this alone, and that’s a good feeling. Being able to come together for this one initiative makes it a fact that teamwork makes the dream work.”

tamron little

Tamron Little, peritoneal mesothelioma survivor and advocate

  • The awareness movement educates the public and funds research.
  • Blue ribbons, wristbands and the Light the World Blue campaign are the movement’s recognized symbols.
  • Because asbestos is the primary cause of mesothelioma, and it remains only partially banned in the U.S., preventing exposure remains the movement’s core goal.
  • Congress officially designated September 26 as National Mesothelioma Awareness Day in 2010 and September is Mesothelioma Awareness Month.
  • Symptoms can take 20 to 60 years to appear after asbestos exposure, making early detection awareness critical.

“Prevention is the key. Every time I have conversations with people, everybody thinks that asbestos is actually banned in the United States, and they're shocked to hear that it's not. …A lot of times people don't get involved unless it actually affects themselves or somebody they know or somebody they love. …You may think that this is not going to affect you, but the truth is it is affecting all of us.”

Missy Miller

Missy Miller, director of Medical Outreach, The Mesothelioma Center

“Participants felt angry regarding their exposure to asbestos and having been diagnosed with mesothelioma and some channelled this anger into campaigning for the removal of asbestos or compensation from those who had exposed them. The ability to release and validate their anger and frustration provided therapeutic value. …Participants expressed the importance to them of a public recognition of the injustice of being exposed to asbestos and that they were a part of a larger social justice movement.”

Dr. Stephanie Ejegi-Memeh, Dr. Catriona Mayland et al., European Journal of Oncology Nursing, 2024

“Collaboration is the future, especially in raising awareness about mesothelioma and the dangers of asbestos exposure. I’ve teamed up with health care advocates as well as reputable organizations such as The Mesothelioma Center and the American Cancer Society on prevention and early detection campaigns. I’m not in this alone, and that’s a good feeling. Being able to come together for this one initiative makes it a fact that teamwork makes the dream work.”

tamron little

Tamron Little, peritoneal mesothelioma survivor and advocate

  • The awareness movement educates the public and funds research.
  • Blue ribbons, wristbands and the Light the World Blue campaign are the movement’s recognized symbols.
  • Because asbestos is the primary cause of mesothelioma, and it remains only partially banned in the U.S., preventing exposure remains the movement’s core goal.
  • Congress officially designated September 26 as National Mesothelioma Awareness Day in 2010 and September is Mesothelioma Awareness Month.
  • Symptoms can take 20 to 60 years to appear after asbestos exposure, making early detection awareness critical.

Why Mesothelioma Awareness Matters

Mesothelioma awareness supports patients, families and advocates. Because mesothelioma is a very rare cancer, with only about 3,000 diagnoses per year in the U.S., it receives far less research funding than more common cancers. It’s also an aggressive and difficult to treat cancer, making research vital. Awareness can inspire public calls for research investment and helps people find mesothelioma experts who can tailor care to their needs, improving outcomes.

Awareness and prevention are also deeply connected. Asbestos is the primary cause of mesothelioma, and the movement’s push for a full U.S. asbestos ban is the most direct way to prevent future diagnoses. Raising public awareness about mesothelioma and its risk factors can also fuel public calls for policy action.

For patients and caregivers, getting involved in mesothelioma advocacy offers hope. Dana Nolan, MS, LMHC, tells us, “There are demonstrated mental health benefits to taking action to stand up for our rights and spread the word about our experiences through advocacy. People often report feeling empowered when they see they can make a difference. …Mesothelioma advocacy usually leads to better understanding and connectedness with providers, family and the community.”

How Survivors and Caregivers Are Getting Involved in Mesothelioma Advocacy

Survivors and caregivers find their own ways into the mesothelioma awareness movement, and research suggests the journey itself can be healing. A 2024 study in the European Journal of Oncology Nursing found that patients who channeled their anger about asbestos exposure into advocacy reported therapeutic value in doing so, and that being part of a larger social justice movement supported their mental health and wellbeing.

Michael Cole, a long-time pleural mesothelioma survivor, knows that balance firsthand. He writes, speaks at webinars and shares personal insights to help others, while staying mindful of his own limits. Michael explains, “I have to live my life in such a way as to manage the stress, to recognize when I may be putting myself in a position of too much stress and do something different. Or to think about a situation differently to minimize or negate the stress. Make an effort to enjoy things and do things that are relaxing.”

Tamron Little was just 21 when doctors diagnosed her with peritoneal mesothelioma. She has since brought mesothelioma awareness to a national stage, including an appearance at the Cancer Moonshot Forum at the White House. “It’s important for people to actually see that a young woman of color was exposed to asbestos as a toddler and diagnosed with peritoneal mesothelioma at the age of 21,” Tamron says. “My transparency is opening up more dialogue for others. I’m creating a space for mesothelioma patients and caregivers to feel comfortable asking uncomfortable questions.”

Kevin Hession, diagnosed with pleural mesothelioma in August 2021, approaches awareness as a calling. “This is like a vocation to me now,” Kevin told us. “I’m trying to use every moment I have to talk to people and give them some sort of encouragement so they don’t have the fears that I had. I don’t want them to feel isolated.” Kevin also makes sure caregivers aren’t overlooked. “People who are taking care of mesothelioma patients also play a vital role and shouldn’t be forgotten. You have to take care of the caregivers.”

How You Can Help Raise Mesothelioma Awareness

Anyone can take part in the mesothelioma awareness movement, and there are meaningful ways to get involved at every level of commitment. Whether you’re a mesothelioma survivor, caregiver or supporter, taking action connects you to a community fighting for research funding, better care and a full asbestos ban.

Ways to Get Involved

  • Join a fundraising walk or run, such as Miles for Meso, a nationwide series of events that has raised nearly $1 million for mesothelioma research since 2009.
  • Participate in The Mesothelioma Applied Research Foundation’s Light the World Blue campaign, which illuminates more than 250 landmarks across the country in blue each September 26, which is Mesothelioma Awareness Day.
  • Wear blue or request a free mesothelioma awareness wristband to show solidarity with patients and families.
  • Share information about mesothelioma and asbestos risks on social media using hashtags such as #EndMesothelioma, #curemeso, #MoreThanMeso and #MesotheliomaAwarenessDay.
  • Contact your representatives to push for a full U.S. asbestos ban and stronger asbestos regulations.
  • Donate to mesothelioma research organizations or patient support groups.
  • Watch or share educational webinars and podcasts from The Mesothelioma Center.

Mesothelioma Awareness Day on September 26 brings the community together around all of these actions at once. It’s one of the most visible opportunities of the year to add your voice to the movement, connect with others who share the cause and push for the policy changes that could end new mesothelioma diagnoses.

Tamron Little

Tamron Little

Verified Asbestos.com Survivor

Longtime Cancer Survivor Reflects on Mesothelioma Awareness

Over the last year, I have been able to shine a spotlight on mesothelioma on a national level – especially when I was afforded the opportunity to attend the Cancer Moonshot Forum at The White House. I was just 21 years old when I was told I had peritoneal mesothelioma. Being diagnosed so young is a rarity.

Tamron Little

Verified Asbestos.com Survivor
Read Tamron’s Story

How Mesothelioma Awareness Day Advances the Cause

Mesothelioma Awareness Day is observed every September 26, uniting survivors, caregivers and loved ones around a shared mission. MARF founded the day in 2004, and Congress officially recognized it in 2010. In 2026, the observance marks its 22nd year since founding. Since its creation, the community has raised awareness, called for asbestos bans, connected with mesothelioma specialists and hosted events that fund research.

Fundraisers and awareness campaigns on and around September 26 put that mission into action. Events such as iWalk4Meso, Miles for Meso and Kayaking 4 Meso raise funds for research while educating the public about the health effects of asbestos exposure. Supporters wear blue clothing, awareness bracelets and ribbons to observe the day and share photos on social media.

ADAO leads Mesothelioma Awareness Month each September, extending the reach of the day’s message across 30 days of advocacy. Together, the day and the month give the community a focused window to amplify awareness, fund research and push for the policy changes that matter most.

How The Mesothelioma Center Advocates for the Mesothelioma Community

The Mesothelioma Center advocates for the mesothelioma community through direct outreach, education and hands-on support for survivors and families. Since 2006, we have connected patients with specialists, educated healthcare providers and worked with the broader awareness movement to advance the cause.

How We Raise Mesothelioma Awareness

  • Our Patient Advocates connect survivors and families with mesothelioma specialists, financial resources and support, helping more than half of all Americans diagnosed with mesothelioma each year.
  • The Medical Outreach team visits the nation’s top cancer centers to build partnerships with leading mesothelioma specialists, connecting patients to the right care and helping healthcare professionals access education and resources.
  • Through our Veterans Outreach program, we build relationships with VA medical centers and veteran service organizations nationwide, raising awareness of military asbestos exposure and ensuring no veteran with mesothelioma is left without support.
  • The Home Health & Hospice Outreach program connects patients with comfort care organizations, scheduling assistance and financial support, serving about 75% of the U.S. population.
  • We’ve built a network of expert contributors including mesothelioma survivors, board-certified doctors and healthcare professionals who write and medically review our content to ensure the mesothelioma community has access to the most current information.

The history of mesothelioma shows that misconceptions about the disease persist, and education remains one of the most powerful tools for changing that. Through webinars, podcasts and a comprehensive library of resources, The Mesothelioma Center aims to create a world that rejects all forms of asbestos and raise awareness across the communities that need it most.

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Organizations Leading the Mesothelioma Awareness Movement

The mesothelioma awareness movement spans a diverse ecosystem of organizations, each approaching the cause from a different angle. Some focus on funding research and accelerating clinical trials. Others advocate for asbestos bans at the state, federal and international level. Still others provide direct support to patients, survivors and families navigating a diagnosis.

Miles for Meso finish line with survivors and their loved ones.
Miles for Meso is an annual marathon to raise awareness and help find a cure for mesothelioma.

Mesothelioma Education and Research Organizations

Organizations around the world are working to raise awareness of mesothelioma, improve patient outcomes and advance research toward better treatments. Their collective goal is a future where mesothelioma is preventable and manageable.

Education and Research Advocacy Organizations

  • Asbestos Disease Awareness Organization: ADAO, which Linda Reinstein and Doug Larkin founded in 2004, educates the public on the dangers of asbestos exposure. The organization also advocates for protecting children, teachers and faculty from asbestos in schools.
  • International Mesothelioma Interest Group: iMiG organizes an international asbestos conference and created the iMiG Research Award. It recognizes work with significance and impact on the future of mesothelioma treatment.
  • International Symposium on Malignant Mesothelioma: The International Symposium is a 3-day event covering the latest treatment advances. It serves as an informational exchange among researchers, oncologists and surgeons.
  • John McNamara Foundation: The McNamara family created a foundation in memory of John McNamara, who died from mesothelioma in 2007. The foundation gives support to people with mesothelioma and unites the community.
  • MARF: Founded in 1999, MARF awards grants for mesothelioma research, has helped secure more than $30 million in federal research funding since 2008 and provides financial assistance and support services to patients and families.
  • Miles for Meso: Launched in 2009, Miles for Meso is a series of nationwide races and walks that spread mesothelioma awareness. The races raise money for improved mesothelioma treatment options. They’ve raised nearly $1 million for research.
  • National Asbestos Awareness Week: National Asbestos Awareness Week educates the public about the dangers of asbestos. A conference held the first week of April covers topics like asbestos issues and advancements in treatment for asbestos-related diseases.
  • Pacific Mesothelioma Center: PMC is a nonprofit that conducts groundbreaking research on mesothelioma treatment procedures. PMC sponsors the annual International Symposium on Malignant Pleural Mesothelioma.

The collective efforts of these organizations over decades have produced real results. Federal funding for mesothelioma research has grown, clinical trial options have expanded and public awareness of asbestos risks continues to reach new audiences. Each organization plays a distinct role, but the impact comes from the movement as a whole.

Organizations Advocating to Ban Asbestos

Asbestos remains legal in the U.S. and in many countries around the world despite its well-documented links to mesothelioma and other deadly diseases. Advocacy organizations at the national and international level have made achieving a full asbestos ban their central mission, working to end exposure before it causes harm.

Asbestos Ban Advocacy Organizations

  • Ban Asbestos Network India: Gopal Krishna founded Ban Asbestos Network India in 2008 and demanded that records on the dangers of asbestos become public under India’s Right to Information Act. In 2018, BANI advocated for safer working conditions for those who work on asbestos-contaminated ships.
  • International Ban Asbestos Secretariat: Founded in 2000, IBAS counters misinformation and provides a platform for survivors to speak out. The IBAS website allows concerned individuals to follow the worldwide effort to ban asbestos. IBAS works with organizations in developing countries to help them reach a broader audience.

The push for a full asbestos ban has gained significant ground over the decades, with nearly 70 countries prohibiting its use. Progress in the U.S. has been slower, but the 2024 EPA chrysotile ban marked a meaningful step forward. The work of these organizations keeps the pressure on until a comprehensive ban becomes reality.

Organizations Raising Asbestos Awareness

All awareness groups seek to reduce mesothelioma and other asbestos-related diseases. More than 70 activist organizations spread awareness about the dangers of asbestos. Their reach extends across 6 continents, reflecting the global scale of the asbestos problem.

Awareness Organizations

  • Asbestos Disease Awareness Organization
  • Asbestos Diseases Foundation of Australia
  • Asbestos Diseases Society of Victoria
  • Asbestos Victims Association (SA) Inc.
  • Asbestos Victims Families Casale
  • Asian Ban Asbestos Network
  • Associazione Esposti Amianto
  • Right on Canada
  • Ban Asbestos Canada
  • Ban Asbestos France
  • Ban Asbestos Network Japan
  • Ban Asbestos Network of India
  • Ban Asbestos Philippines
  • International Ban Asbestos Secretariat
  • Associazione Famigliari e Vittime dell’Amianto
  • Asociación Argentina de Expuestos al Amianto
  • Associacão Brasileira dos Expostos ao Amianto
  • Association Belge des Victimes de l’Amiante
  • Greater Manchester Asbestos Victims Support Group
  • Association Nationale de Défense des Victimes de l’Amiante
  • Asian Network for the Rights of Occupational Accident Victims

Many of these organizations grew directly from the experiences of survivors and families who turned their diagnoses into action. Their advocacy has shaped legislation, informed medical research and built communities where people coping with a mesothelioma diagnosis know they’re not alone. That foundation of grassroots action is what gives the broader awareness movement its strength.

Common Questions About Mesothelioma Awareness

What is the color of mesothelioma cancer awareness?

Blue is the official color of mesothelioma awareness. Supporters wear blue awareness ribbons, wristbands, bracelets, necklaces and clothing, especially on Sept. 26 each year. The blue color is shared with lung and asbestos awareness causes because mesothelioma is most commonly diagnosed in the lining of the lungs. Wearing blue and showing support helps mesothelioma families feel seen while raising funds for better treatments.

What are some ways I can support mesothelioma survivors?

Supporting mesothelioma survivors starts with taking action. Join fundraising races like Miles for Meso or iWalk4Meso, both of which offer virtual options. Call your political representatives to push for a full U.S. asbestos ban, share awareness on social media and donate to organizations working on behalf of the mesothelioma community. ADAO regularly hosts conversations on X (formerly Twitter) where survivors, supporters and experts connect and share information.

When is Mesothelioma Awareness Month?

Mesothelioma Awareness Day 2026 is Saturday, Sept. 26, bringing together survivors, caregivers, advocates and supporters around a shared mission. Supporters can join virtually or in person through fundraisers like Miles for Meso, social media campaigns and educational webinars.

How can I stay informed on the latest mesothelioma treatment advances and asbestos legislation?

Asbestos.com regularly publishes news stories and blogs about new laws, breakthrough treatments and clinical trials. Our mesothelioma podcasts and webinars are another resource for staying current on newly developed treatment options and advocacy efforts.

When is Mesothelioma Awareness Day 2026?

Mesothelioma Awareness Day 2026 falls on Saturday, September 26, 2026. The day is observed every year on September 26. The 2026 observance marks the 22nd year since the Mesothelioma Applied Research Foundation founded the day in 2004. Supporters can join virtually or in person through fundraisers like Miles for Meso, social media campaigns and educational webinars.

Where can I get a free mesothelioma awareness wristband?

The Mesothelioma Center sends free mesothelioma awareness wristbands to anyone who requests one. Wristbands are blue and read “Find a Cure for Mesothelioma.” To request one, fill out the form on the free wristbands page. Many supporters share photos wearing the wristband on Sept. 26 using #MesotheliomaAwarenessDay to amplify reach.

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