Mesothelioma Caregiver Burnout
Mesothelioma caregiver burnout is a state of physical, mental and emotional exhaustion felt by people who provide care to a mesothelioma patient. Burnout is common among mesothelioma caregivers, and there are ways to manage it.
Asbestos.com is the nation’s most trusted mesothelioma resource
The Mesothelioma Center at Asbestos.com has provided patients and their loved ones the most updated and reliable information on mesothelioma and asbestos exposure since 2006.
Our team of Patient Advocates includes a medical doctor, a registered nurse, health services administrators, veterans, VA-accredited Claims Agents, an oncology patient navigator and hospice care expert. Their combined expertise means we help any mesothelioma patient or loved one through every step of their cancer journey.
More than 30 contributors, including mesothelioma doctors, survivors, health care professionals and other experts, have peer-reviewed our website and written unique research-driven articles to ensure you get the highest-quality medical and health information.
About The Mesothelioma Center at Asbestos.com
- Assisting mesothelioma patients and their loved ones since 2006.
- Helps more than 50% of mesothelioma patients diagnosed annually in the U.S.
- A+ rating from the Better Business Bureau.
- 5-star reviewed mesothelioma and support organization.
My family has only the highest compliment for the assistance and support that we received from The Mesothelioma Center. This is a staff of compassionate and knowledgeable individuals who respect what your family is experiencing and who go the extra mile to make an unfortunate diagnosis less stressful. Information and assistance were provided by The Mesothelioma Center at no cost to our family.LashawnMesothelioma patient’s daughter
How to Cite Asbestos.com’s Article
Whitmer, M. (2023, May 5). Mesothelioma Caregiver Burnout. Asbestos.com. Retrieved June 8, 2023, from https://www.asbestos.com/support/caregivers/burnout/
Whitmer, Michelle. "Mesothelioma Caregiver Burnout." Asbestos.com, 5 May 2023, https://www.asbestos.com/support/caregivers/burnout/.
Whitmer, Michelle. "Mesothelioma Caregiver Burnout." Asbestos.com. Last modified May 5, 2023. https://www.asbestos.com/support/caregivers/burnout/.
What Causes Caregiver Burnout?
Caregiver burnout is caused by too much long-term stress. It can develop if caregivers don’t get enough help and don’t take enough breaks.
Caregivers who are burned out often experience extreme fatigue, irritability, anxiety and depression. Their attitude may change from hopeful and caring to hopeless and overwhelmed.
Knowing the signs of burnout can help mesothelioma caregivers recognize when they need to take steps to address it.
What Are Some Symptoms of Caregiver Burnout?
The American Psychological Association published a report in 2011 on stress in the U.S. It reported caregivers experience higher levels of stress than the general population, believe they do a poor job of managing and preventing stress, and perceive themselves to be in poor health.
A 2021 Clinical Nurse Specialist reference defines caregiver burnout or stress as a state of emotional, mental and physical exhaustion related to the burden of caregiving.
Symptoms of caregiver burnout include:
- Emotional, mental and physical exhaustion
- Feeling irritable, angry, sad, hopeless or anxious
- Becoming impatient or argumentative with others
- Mood swings
- Loss of interest in activities
- Withdrawal from family, friends and coworkers
- Changes in sleep patterns or difficulty sleeping
- Changes in appetite
- Getting sick more often or developing health issues
- Neglecting your own physical and emotional needs
Additionally, a 2011 UCLA Center for Health Policy Research report found that caregivers experience higher levels of psychological distress than non caregivers. Caregivers are also more likely to engage in poor health-related behaviors such as smoking.
The report said middle-aged caregivers may be at the greatest risk for poor health outcomes such as high blood pressure, heart disease and diabetes. This could affect adult children of mesothelioma patients who take on a caregiving role midlife.
How Can I Reduce My Stress as a Caregiver?
Consider the following measures to reduce stress and better deal with being a mesothelioma caregiver:
- Take a lot of breaks
- Rely on others for help
- Ask your employer about time off, flex time and other resources
- Take advantage of respite care
- Focus on problem-solving and self-care
- Take steps to get adequate sleep
- Schedule leisure time
- Address your health issues quickly
- Exercise regularly
- Check in with your own needs and find ways to meet them
Respite care is one of the best ways to provide relief for a primary caregiver. This kind of care is available at home and in respite care centers. Insurance benefits, VA benefits and state agencies may help cover the cost of respite care.
Home health services provide nurses and home health aides for short-term care. Additionally, private care aides are professionals who specialize in assessing needs and coordinating care.
Caregiver statistics show 35% of female caregivers handle the most difficult caregiving duties, such as toileting, bathing and dressing, compared to 24% of male caregivers, who tend to help with financial planning and other less difficult tasks.
Divvying up the most difficult duties among primary and secondary caregivers reduces stress. It’s best for caregivers to shoulder burdens as equally as possible. This approach is important to apply when offering end-of-life care to a loved one with mesothelioma.
Identifying Causes of Stress
Understanding the causes of caregiver burnout, also known as caregiver stress syndrome, can help caregivers pinpoint areas where they need help.
Neglecting Your Own Health and Needs: Caregivers can become so busy caring for someone else that they forget to take care of themselves. It becomes easy to neglect your own health and needs when you feel so focused on someone else’s. Make sure to schedule time for self-care and relaxation. Ask a friend to check in on you weekly.
Role Changes: Becoming a caregiver often involves changes in roles. A spouse caring for their partner or a child caring for their parent may experience stress as they take on difficult caregiving duties. It takes time to adjust to role changes. Talking to a mental health therapist or a close friend about your feelings may help.
Unrealistic Expectations: Many caregivers put in a lot of effort and expect their help to have a positive impact on their loved one. Sometimes caregivers experience stress when their loved one doesn’t get better after all the work they’ve put in. Caregivers must learn to accept what is out of their control. Meeting with a grief counselor may help.
Unreasonable Demands: It is common for primary caregivers to take on too many responsibilities. They may set unreasonable demands on themselves that contribute to stress. Ask a family member or friend to take on some caregiving duties to lessen your load.
How Long Does Caregiver Burnout Last?
Caregiver burnout will last until the caregiver gets adequate help and rest.
Working with a mental health professional, such as a therapist, grief counselor or social worker, can help you identify the steps you can take to recover from burnout.
Taking time and space to process your emotions will help. Try to find ways to relieve stress and decompress. They may include exercising or watching your favorite TV show.
Caregiver Burnout and Grief
After the loss of a loved one, it is common for caregivers to experience grief months or years later. This is called delayed grief.
Even before a loss, caregivers can experience anticipatory grief when their loved one is diagnosed with a terminal illness and throughout their caregiving journey. It can take many years to process emotions from diagnosis to years after a loss.
When a person is struggling to handle a stressful situation, it is normal to feel numb to stress, loss and grief. Often, these feelings surface once the stressful circumstance has passed, when we finally feel like we have time and room to breathe again.
Caregiver burnout can complicate delayed grief. The effects of caregiver burnout can linger for months or years, contributing to the delay.
Caregiver Burnout Coping Strategies
Consider the following coping strategies to deal with caregiving stress:
- Talk about your feelings on a regular basis with someone you trust.
- Accept that you can’t do it all alone, and open up to help from others.
- Set realistic goals, and don’t overwork yourself.
- Join a caregiver support group to find others who can relate to you.
- Schedule time for self-care and activities you enjoy.
- Schedule respite care to ensure a full break from caregiving.
- Work with a mental health professional to develop new coping methods and relaxation techniques.
- Promote your health by eating well, exercising regularly and developing good sleep hygiene.
- Learn to accept how you feel — including the negative or difficult feelings. Resisting or suppressing emotions contributes to stress. Find healthy ways to process how you feel