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A mesothelioma diagnosis can be overwhelming for patients, caregivers, family and friends. The Mesothelioma Survivor, Caregiver & Family Support private Facebook group serves as a safe place to connect with others coping with the disease.
Written by Michelle Whitmer | Edited By Fran Mannino | Last Update: July 23, 2024
Support groups offer empathy, emotional nurturing, knowledge from experience and resources. They also help people gain a sense of agency in how they respond to things they cannot control.
Within the Mesothelioma Survivor, Caregiver & Family Support Facebook group, participants can freely share their stories and ask for advice from those who have been there.
Members of the Facebook group can exchange skills and coping methods and encourage each other to keep going when the going gets tough. Staying active in the Facebook group may help motivate participants to meet challenges with grace and strength.
Without a shadow of a doubt, The Mesothelioma Center Facebook group is one of the best groups I have joined…The support that the group provides is amazing; the information given is extremely scientific and objective, and all the updates from the group regarding the latest global news on mesothelioma research is very informative and uplifting! Thanks again!Nicholas B.Mesothelioma Caregiver
Benefits of joining the online support group include:
Because it uses the Facebook platform, the Mesothelioma Survivor, Caregiver & Family Support group is accessible to members 24/7 from the comfort of their own homes.
Unlike some online support groups with more formal monthly meetings, participants can post messages to the Facebook page at any time of the day or night. This real-time communication fosters a sense of community within the group and allows for supportive contact when it is most needed.
The informality of the Mesothelioma Survivor, Caregiver & Family Support Facebook group makes it easy to interact with others dealing with a mesothelioma diagnosis.
While other online support groups might have a narrower focus, this Facebook group is inclusive of all those affected by mesothelioma, from patients and caregivers to extended family.
For mesothelioma caregivers looking to discuss support, resources and stories with other caregivers, we also host a private and exclusive group for this purpose. The Mesothelioma Caregivers Support Community is a safe space where only caregivers can share their insights and experiences with other caregivers.
Because of its interactive nature, members can join conversations already in progress or search the page for topics of interest. They can also post new questions, share photos and receive timely responses to their queries from patient advocates and other participants.
Whether you are personally battling mesothelioma, caring for a loved one with a mesothelioma diagnosis or have lost someone to this rare cancer, you are welcome in the Mesothelioma Survivor, Caregiver & Family Support group on Facebook.
Members share stories of loved ones and their struggles with mesothelioma. They also seek out similar experiences from those who are dealing with treatment and caregiving issues.
The group is a safe space where people often post personal stories of day-to-day struggles and milestones. Within the group is a supportive community of Patient Advocates and caregivers who are there to answer questions and provide support for members.
Several rules guide the support group. Moderators oversee the rules, so all members feel safe interacting with one another.
The rules are as follows:
Launched in 2019, the Mesothelioma Survivor, Caregiver & Family Support Facebook group helps patients and caregivers of a loved one diagnosed with mesothelioma cope with the disease.
Because it is a private Facebook group, it is available only to people affected by mesothelioma. The general public does not have access to the group or any participant’s private information.
Patient Advocates from The Mesothelioma Center at Asbestos.com will speak with each person requesting to join the group before they are accepted. This ensures the private Facebook group is a safe space for all.
Registered nurse Karen Selby is available within the Facebook group to answer medical questions and share information about clinical trials. She is also happy to connect with participants offline if requested.
Mesothelioma caregiver and author Lorraine Kember is an active member of the group. Both she and Selby have years of experience with mesothelioma and are uniquely qualified to address questions from group members.
Experts from The Mesothelioma Center at Asbestos.com moderate The Mesothelioma Survivor, Caregiver & Family Support group.
Signing up for the Mesothelioma Survivor, Caregiver & Family Support group is not difficult, but help is provided if needed.
Facebook users can also access the page directly using this link: Mesothelioma Survivor, Caregiver & Family Support.
When joining the Mesothelioma Survivor, Caregiver & Family Support group, prospective members will be asked three questions. The questions are meant to protect the privacy of members and ensure that only those impacted by mesothelioma are accepted into the group.
The three membership questions are:
If you are requesting to join and haven’t answered all of the questions, our communications manager will attempt to connect with you via a direct message on Facebook.
Anyone having trouble connecting to the group should email Communications Manager Cara Tompot at cara@asbestos.com.
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If you are looking for mesothelioma support, please contact our Patient Advocates at (855) 404-4592
The Mesothelioma Center at Asbestos.com has provided patients and their loved ones the most updated and reliable information on mesothelioma and asbestos exposure since 2006.
Our team of Patient Advocates includes a medical doctor, a registered nurse, health services administrators, veterans, VA-accredited Claims Agents, an oncology patient navigator and hospice care expert. Their combined expertise means we help any mesothelioma patient or loved one through every step of their cancer journey.
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My family has only the highest compliment for the assistance and support that we received from The Mesothelioma Center. This is a staff of compassionate and knowledgeable individuals who respect what your family is experiencing and who go the extra mile to make an unfortunate diagnosis less stressful. Information and assistance were provided by The Mesothelioma Center at no cost to our family.LashawnMesothelioma patient’s daughter
Whitmer, M. (2024, July 23). Mesothelioma Facebook Support Group. Asbestos.com. Retrieved October 22, 2024, from https://www.asbestos.com/support/mesothelioma-facebook-group/
Whitmer, Michelle. "Mesothelioma Facebook Support Group." Asbestos.com, 23 Jul 2024, https://www.asbestos.com/support/mesothelioma-facebook-group/.
Whitmer, Michelle. "Mesothelioma Facebook Support Group." Asbestos.com. Last modified July 23, 2024. https://www.asbestos.com/support/mesothelioma-facebook-group/.
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