Mesothelioma Information

We’ve gathered mesothelioma information and resources to help you and your loved ones face the cancer. Here you will find all the things you’ll need to navigate mesothelioma treatment, build a support network, find financial assistance and explore your legal options.

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This page features: 11 cited research articles

A mesothelioma diagnosis feels devastating to the families who face it. Everyone feels lost and overwhelmed at first.

You probably have many questions about treatment and surviving the disease.

We created this resource to support newly diagnosed patients and their loved ones navigate every aspect of living with mesothelioma. From here, you can find more information about mesothelioma, its treatment and the many ways you can support yourself and your family through this experience.

Steps to Take After a Mesothelioma Diagnosis

  • Get a second opinion
  • Learn about mesothelioma and its treatment
  • Research clinical trials that you may qualify for
  • Tap into VA benefits if you’re a veteran
  • Build a support system and join a support group
  • Consider your legal options
  • Access financial assistance and treatment grants

One of the most important first steps after a mesothelioma diagnosis is getting a second opinion from a mesothelioma specialist. These doctors have the skills and experience necessary to treat this rare cancer on an individual basis. They can get you access to the latest treatments and clinical trials.

Once your diagnosis is confirmed, you can learn all about mesothelioma and how the cancer is treated. We can help you find the support and resources you need.

Information About Mesothelioma

Mesothelioma primarily occurs in people who worked with asbestos for a long time. Some people were exposed through a family member who worked with asbestos. This is known as secondary exposure.

Key Stats

Mesothelioma Information

  • Average age of mesothelioma patient is 69. Source: American Cancer Society

  • Asbestos bankruptcy trusts contain more than $30 billion. Source: RAND Corporation

  • Estimated value of mesothelioma claim is $180,000. Source: RAND Corporation

  • 40% of mesothelioma patients survive at least 1 year. Source: American Cancer Society

  • Veterans make up 30% of all mesothelioma lawsuits. Source: New York Times

  • Mesothelioma symptoms take 20-50 years to appear after exposure. Source: European Journal of Cancer Prevention

  • Approximately 3,000 new cases diagnosed annually in the U.S. Source: American Cancer Society

Mesothelioma Treatment Resources

Mesothelioma is treated with chemotherapy, surgery and radiation therapy. Clinical trials are testing new treatments including immunotherapy.

Mesothelioma Support Resources

Information about mesothelioma being explained to an older couple by Karen Selby, Registered Nurse and Patient Advocate for the Mesothelioma Center.
Karen Selby, RN and Patient Advocate, reviews our Mesothelioma Guide, one of the best sources of information and support on this rare cancer.

Support for mesothelioma comes in many forms. Patients are encouraged to grow a strong support system involving family, friends, neighbors and community members.

Consider the following resources to support yourself and your family.

Financial Help

Another important form of support is financial help. Mesothelioma treatment is expensive with and without insurance. Families can benefit from several different types of financial support including Social Security Disability, VA benefits, and travel, housing and treatment grants.

Resources for Mesothelioma Patients

Resources for Veterans Exposed to Asbestos

Veterans are disproportionally affected by mesothelioma. That’s because every branch of the U.S. armed forces used asbestos products until regulations were implemented the 1970s.

Additional Mesothelioma Information

A number of national, nonprofit and research organizations provide educational information and resources for families affected by mesothelioma.

Additionally, the U.S. National Library of Medicine provides a searchable database of clinical trials. Patients can visit ClinicalTrials.gov to find new mesothelioma clinical trials and view results of past trials.

No one should have to face mesothelioma alone. We can help you access cancer resources and build the support system you need to overcome challenges. The road ahead may be bumpy, but you can inform yourself with knowledge and support yourself with resources to smooth the ride.

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Michelle Whitmer, Content Writer at Asbestos.com

Joining the team in February 2008 as a writer and editor, Michelle Whitmer has translated medical jargon into patient-friendly information at Asbestos.com for more than eight years. Michelle is a registered yoga teacher, a member of the Academy of Integrative Health & Medicine, and was quoted by The New York Times on the risks of asbestos exposure. Read More

Last Modified July 24, 2018
Sources
  1. MedlinePlus. (2018, March 1). Mesothelioma.
    Retrieved from: https://medlineplus.gov/mesothelioma.html
  2. Mayo Clinic. (n.d.). Mesothelioma.
    Retrieved from: https://www.mayoclinic.org/diseases-conditions/mesothelioma/symptoms-causes/syc-20375022?p=1
  3. National Cancer Institute. (2018, May 2). Malignant Mesothelioma Treatment.
    Retrieved from: https://www.cancer.gov/types/mesothelioma/patient/mesothelioma-treatment-pdq#section/_50
  4. Macmillan Cancer Support. (2018). Mesothelioma.
    Retrieved from: https://www.macmillan.org.uk/information-and-support/mesothelioma
  5. June Hancock Mesothelioma Research Fund. (n.d.). Patient support groups.
    Retrieved from: https://www.junehancockfund.org/useful-contacts-links/
  6. National Cancer Institute. (2018, March 16). Nutrition in Cancer Care.
    Retrieved from: https://www.cancer.gov/about-cancer/treatment/side-effects/appetite-loss/nutrition-pdq
  7. Cancer Care. (n.d.). Coping with Mesothelioma. Retrieved from: https://www.cancercare.org/publications/257-coping_with_mesothelioma
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